How It Started
The Engalla Hope Foundation (EHF) was founded by our family, after struggling with Schizophrenia for over a decade. Our son and brother, Brett, was diagnosed with schizophrenia eleven years ago.
We were a “normal” family, husband, wife, four kids, good in school, involved with after-school activities, lots of “goals” for our kids. What we thought were developmental “gaps” were early signs of schizophrenia. By the time Brett was 18, our hope for a productive life vanished. We had lost our son to something else we did not understand.
Years of loneliness, confusion, disenfranchisement, and desperation, we were going nowhere and losing hope. In and out of hospitals, disabled, Brett’s life was being discarded, by society. Even worse, he was being discarded by us, sent to a group-home, because he could no longer live safely with us.
We discovered “tiers” of solutions for families that live with schizophrenia. The best was not attainable for most, we generalized our experiences into the following categories
Intensive therapy, followed by sustainable living accomodations Sustainable living with onsite clinicians to ensure medical compliance Group homes with limited therapy, and limited ability to support medical compliance Your home (where distinctions are drawn between “normal” and delusional - more on this later) Homelessness (needs no explanation) Jail
The first two were not options for us. That left us with the remaining options, and other than homelessness, we experienced them. They were not adequate in treating our son. Still lonely, confused, disenfranchised, and desperate, we needed to find a better solution.